Groundbreaking Ecosystem Map Reveals Innovative Collaborations, Care Pathways, and Technologies for Dementia
According to Dombrowski, "By organizing previously separate best practices into one diagram, what we've done is show how important it is for everyone in the dementia ecosystem to work together, so that people living with dementia and their families are not struggling alone, nor are the responsibilities for timely diagnosis and treatment resting solely on dementia specialist physicians."
The Dementia Ideal Care Map is unique from other dementia resources as one comprehensive map encompassing:
- The whole ecosystem of relevant groups
- The life course journey from childhood, risk reduction, public awareness, community-based supports, and innovative care pathways for timely diagnosis and medical treatments involving community partners and Virtual Brain Health Clinics;
- The role of policy, funding, research, training, health system readiness, and other infrastructure;
- And nearly 100 technology solutions, including AI, recommendation engines, sensors, remote monitoring, telehealth, data infrastructure, digital biomarkers and digital health tools.
"The Dementia Ideal Care Map identifies hundreds of intersecting opportunities to strengthen clinical and non-clinical supports. It offers substantial and achievable ways to overcome health system capacity challenges, advance health justice, and improve quality of life for and with all who are affected by dementia." says co-author and LEAD Coalition executive director Ian Kremer.
The Dementia Ideal Care Map serves as a roadmap for planning and coordinating the broad dementia ecosystem.
"This map sets us on the path towards a greater chance of success in creating effective plans centered on people living with dementia," says co-author Teepa Snow, founder of Positive Approach to Care®.
In addition to guiding governments and organizations in policy development, capacity building, service planning, and multi-group collaboration, the Dementia Ideal Care Map helps affected family and friends navigate this complex condition.
"Often there are overwhelming feelings and uncertainties when someone is told your loved one or you have dementia. This journey map provides an overview of steps that can be taken to travel on this journey with greater understanding," says co-author Jennie Chin Hansen, the immediate past CEO of the American Geriatrics Society and a past president of AARP.
View the Dementia Ideal Care Map and accompanying commentary at https://linktr.ee/caremap
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NOTES FOR EDITORS
ARTICLE
Dombrowski W, Mims A, Kremer I, Cano Desandes P, Rodrigo-Herrero S, Epps F, Snow T, Gutierrez M, Nasta A, Epperly MB, Manaloto K, Hansen JC (2024) Dementia Ideal Care: Ecosystem Map of Best Practices and Care Pathways Enhanced by Technology and Community. Journal of Alzheimer's Disease 100(1) 87–117.
DOI 10.3233/JAD-231491
CONTACT
Wen Dombrowski
care@catalaize.com
ABOUT CATALAIZE
CATALAIZE advises investors, technology innovators, healthcare and other industries on innovations and new technologies. Clients include multiple Fortune 10, Fortune 500, small & medium enterprises, nonprofits & startups globally—in tech, retail, manufacturing, medical device, pharma, insurance, healthcare; and regional economic development, investment banks, venture capital, corporate venture, and social impact funds. www.catalaize.com
ABOUT LEAD COALITION
Leaders Engaged on Alzheimer's Disease (LEAD Coalition) is the uniting voice of over 275 member and allied organizations, along with more than 250 leading researchers at universities around the world. The coalition works with the U.S. Congress and federal agencies to improve public health, strengthen clinical and non-clinical services, and advance science to prevent, slow, and stop the diseases that cause dementia. www.leadcoalition.org
ABOUT POSITIVE APPROACH TO CARE®
Founded by globally esteemed dementia educator, Teepa Snow, MS, OTR/L, FAOTA, the mission of Positive Approach to Care (PAC) is to improve the culture of dementia care. PAC provides services, training, and products for professionals, family members, the lay public, and people living with brain change worldwide. www.teepasnow.com
ABOUT THE JOURNAL OF ALZHEIMER’S DISEASE (JAD)
Now in its 28th year of publication, the Journal of Alzheimer’s Disease (JAD) is an international multidisciplinary journal to facilitate progress in understanding the etiology, pathogenesis, epidemiology, genetics, behavior, treatment, and psychology of Alzheimer’s disease. The journal publishes research reports, reviews, short communications, book reviews, and letters-to-the-editor. Groundbreaking research that has appeared in the journal includes novel therapeutic targets, mechanisms of disease, and clinical trial outcomes. JAD has a Journal Impact Factor of 3.4 according to Journal Citation Reports (Clarivate, 2024). The journal is published by IOS Press. www.j-alz.com
ABOUT IOS PRESS
IOS Press, now part of Sage, is an international scientific, technical, medical (STM) publishing house established in 1987 in Amsterdam. We produce around 90 journals and 70 books annually in a broad range of subject categories, primarily specializing in health and life sciences (including neurosciences, medical informatics, cancer research, and rehabilitation) and computer sciences (including artificial intelligence, data science, and semantic web). In addition, we offer specialized services that support scientific advancement. www.iospress.com
ABOUT SAGE
Sage is a global academic publisher of books, journals, and library resources with a growing range of technologies to enable discovery, access, and engagement. Believing that research and education are critical in shaping society, 24-year-old Sara Miller McCune founded Sage in 1965. Today, we are controlled by a group of trustees charged with maintaining our independence and mission indefinitely. https://group.sagepub.com
